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Month: February 2019

Posted on 7 Feb 20197 Feb 2019

Patient to Pageant- Sharing my Invisible Illness Story

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It Takes a Village! Live a Great Story!

Emma, founder of Patient Perspective, poses in front of a handicap parking sign. She is wearing a crown made of flowers and smiles softly for the camera.

Emma sits at the bedside of her Grandpa’s hospital bed. He was a disabled veteran and taught her the importance of finding strength in her story.

Emma, Brian (Emma’s boyfriend) and Clara (Emma’s friend) smile for the camera!

Kelsey, (Emma’s nurse) and Melissa (Emma’s favorite Tech) pose for a picture at The Daisy Foundation Awards Ceremony at Ascension Hospital, Racine WI.

Emma’s Mom, Emma, and Emma’s Dad smile for a selfie at her Scholarship Awards Luncheon. Emma is a Professional Communications Major at Gateway Technical College.

Emma flexes for the camera, her shirt is lifted to see her gastric feeding tube.

Emma blogs from her bed at the hospital. This is her Patient Perspective!

Emma, Morgan also known as “Mo” and Mikaela smile for a selfie together at a concert. Emma says “Don’t let what you are going through hold you back from experiencing life.”

Emma holds her gastric feeding tube in one hand. Emma has a feeding tube due to her chronic illnesses.

Emma’s friends stand in order: Monica, Clara, Amanda, Emma, and Brian in front of a Ferris wheel. Life is a ride!

Emma stands in her hospital room. There are electroencephalogram wires connected to her head and body. The journey is not always easy, but it is always worth it.

Emma. her doctor from the Mayo Clinic and her Mother smile for a selfie in the Gastrointestinal Department of the Clinic. This doctor saved her life.

Emma holds an injection in her hand and smiles for a picture in her kitchen. Emma injects this medicine and puts her body into menopause to help control the symptoms of her chronic illnesses.

Emma stands with her fellow warrior, Aleigh in the lobby of the Mayo Clinic. Aleigh and Emma met online through a support group.

Emma attended a walk for Postural Orthostatic Tachycardia Syndrome and flexes her left arm to symbolize strength and holds her shirt halfway up to show her feeding tube.

Emma is wearing a Vogmask, which is a reusable hospital face mask.

Emma created a team full of family and friends for an awareness walk. She named her team “Squid Strong” after her childhood nickname, Squid. The walk for POTS took place in Kenosha, WI.

A group of 16 girls wearing Love Your Melon hats pose for a picture at a Love Your Melon Photoshoot. Emma was a superhero recipient for Love Your Melon. LYM is an organization dedicated to putting a hat on every child battling cancer. However, and thankfully Emma does not have cancer. The organization recognized her battle with Mast Cell Disease.

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